That is absolutely horrible and terrifying. I have some kind of sleeping disorder, it's not insomnia but my "natural clock" is skewed. I can have the regular 8 hours of sleep-pattern, but I cannot go to bed in the evening since I simply do not get tired. I get a sensation of being able to pass out around 6-7am, regardless of when I went up and what I did the day before, at which point I can fall asleep. It's a distinct feeling, and before I feel it trying to fall asleep is not an option. My doctor jokingly suggested moving to the US, where my clock would fit in with the regular daily rhythm, lol. Thankfully, my issue is easily combated with melatonin, I pop 2 of 'em lil' fuckers 3 hours before I go to bed and woosh, I'm out.
So I can almost, kinda relate to this. The shit I have, but without the ability to pass out in the morning. To have the feeling, just not the means. Fuck, OP, that is one sick disease. I'd go as long as I could then I'd say farewell to my loved ones and end myself before I fell into a deranged misery.