Charlie Gard potentially granted US residency by congress to fly to US for treatment!

[Noradin]

Who's going to pay for it? Republicans don't even want to pay for healthcare for our own citizens.

It is just a ruse to shame others into voting for the bill they attached this to, there is no chance that he will ever reach the US so it won't cost the Republicans any money at all. Ever.

[Arunu]

Again, where's the suffering? Aside from the parents, that is. Since when can a corpse suffer? That's all the kid is at this point; a corpse. Albeit one whose biological systems are still functioning because of technology, but a corpse nonetheless. Or what, is an autopsy torture now, too? Hell, how about fucking surgery at all? I mean, in those cases the subjects are still alive and just unconscious. So clearly anyone who performs surgery or an autopsy is Dr. Mengele reborn, amirite?

Jesus.

you can keep cursing and shouting about this but even on your basis ( all the doctors disagree on you but meh ) the experimental treatment would accomplish nothing.
absolutely squat, all it would do is enrich the american specialist and give some PR points to his name.

the experimental treatment was in his words "to relieve pain and restore some muscle movement hopefully "
pain he can not feel according to you, muscles he can no longer operate via his brain.
there is nothing to be gained except millions of dollars for a treatment that has already been tried by the UK as well.

[Xandrigity]

Parents have now withdrawn their fight to move baby to the US saying it's too late and won't help him.

http://www.cnn.com/2017/07/24/health...ion/index.html


I'm glad the parents came to grips with reality and will allow him to die peacefully with some dignity.

[xanzul]

Such a ridiculous effort to try to save the life of someone who is going to die anyway soon, while people that could be easily saved from the millions alone that were funded to his cause are dying in the thousands daily.

But sure, it's all about PR now, prolonging the suffering of a child for Facebook likes.

I assure you the parents of this child don't give two fucks about Facebook likes.

- - - Updated - - -

So the US congress decided to make the child a US citizen, which means that the UK are holding a US citizen hostage if they don't release him for medical reasons. A minor and personal issue just escalated into a diplomatic debacle because the congress needs to pander harder. Gz!

So basically you don't understand how the law works at all whatsoever?

- - - Updated - - -

Do we know the kid is brain dead or unable to feel pain ?

Because brain damage does not mean it has inhibited the pain area of the brain.

Still there is a sad truth. The money spent on trying to unlikely save a baby could be spent on other with more likely chance. We should as human work to save those we can, however we need to take in consideration what help would be the best. That the kind of situation where they can't be any winner, just more or less loser.

That's why I don't like the telethon. The telethon take for itself a big part of people capacity of charity to spend more than necessary for some rare desease where we could actually save a lot more by donating to other organization.

Still my sympathies for the parent who have to deal with an horrible situation, no matter what. I won't blame them.

And the data gathered by this child being treated could very well lead to saving the lives of other children who have the same genetic disorder.

[Elegiac]

And the data gathered by this child being treated could very well lead to saving the lives of other children who have the same genetic disorder.

Cool story. Still unethical.

[xanzul]

Best case scenario is the plane transporting the kid crashes. Stops the suffering and kills the people responsible for it.

And kills every child who continues to die from this rare genetic disorder. Treatments can't be developed from "mercy killings". But sure fuck everyone else because thats ok as long as this kid isn't "suffering".

[Elegiac]

And kills every child who continues to die from this rare genetic disorder. Treatments can't be developed from "mercy killings". But sure fuck everyone else because thats ok as long as this kid isn't "suffering".

We have ethical standards regarding human experimentation for a reason.

No consent, no research. That's simply how it goes.

[Stormdash]

Good news for those that believe our lives and choices are ultimately the property of the state before all else, I guess. Congrats, totalitarians.

[Heladys]

Parents have now withdrawn their fight to move baby to the US saying it's too late and won't help him.

http://www.cnn.com/2017/07/24/health...ion/index.html


I'm glad the parents came to grips with reality and will allow him to die peacefully with some dignity.

Good. It was too late and wouldn't help him even before they started their foolish campaign.

[BuckSparkles]

Parents have given up. Score a victory for socialized healthcare and one for the state.

[Gorsameth]

Good news for those that believe our lives and choices are ultimately the property of the state before all else, I guess. Congrats, totalitarians.

Except its not your life. You can do whatever you want with your life and you are free to get whatever treatment you want for yourself.

But you don't have that right over another person. Even if that person is your child.
If you yourself cannot make choices and left no instructions (which you cant as a baby obv) then someone impartial will decide. And the parents are in no way impartial.

[Xandrigity]

I hope they allow the parents to take him home and let him die there.

[Medusa Cascade]

I hope they allow the parents to take him home and let him die there.

Would be quite difficult I'm afraid.

[Deleted]

Parents have given up. Score a victory for socialized healthcare and one for the state.

Mmm...twisting a sad story in order to attempt (and fail massively) to score political points.

Also just out of interest I wonder how much Charlie's care so far would have cost an uninsured American couple?

A birth is about $100k alone I think?

[Xandrigity]

Would be quite difficult I'm afraid.

It not easy but not overly difficult. Home ventilators and a feeding tubes are common nowadays as is hospice home healthcare. It might give the parents some privacy and closure.

[Tierbook]

Mmm...twisting a sad story in order to attempt (and fail massively) to score political points.

Also just out of interest I wonder how much Charlie's care so far would have cost an uninsured American couple?

A birth is about $100k alone I think?

Theoretically. In reality it'd probably be closer to 10k for a birth after everything is said and done. I base this off what my dad said about such costs.

- - - Updated - - -

It not easy but not overly difficult. Home ventilators and a feeding tubes are common nowadays as is hospice home healthcare. It might give the parents some privacy and closure.

Nope the hospital already said he's not allowed to leave and has to die there. That was the original issue after all, not whether he'd be released to try the experiment in the US but that he'd be released to die at home.

[Medusa Cascade]

It not easy but not overly difficult. Home ventilators and a feeding tubes are common nowadays as is hospice home healthcare. It might give the parents some privacy and closure.

But takes time to organise in my experience

[Xandrigity]

Theoretically. In reality it'd probably be closer to 10k for a birth after everything is said and done. I base this off what my dad said about such costs.

- - - Updated - - -



Nope the hospital already said he's not allowed to leave and has to die there. That was the original issue after all, not whether he'd be released to try the experiment in the US but that he'd be released to die at home.

10-25k depending on where you live and what the method of delivery is

- - - Updated - - -

But takes time to organise in my experience

It could be organized in a few days. The only hold out might be he has not been trached and the hospital may not feel ok sending him home without a permanent airway and perhaps a surgically placed feeding tube as opposed to a nasogastric feeding tube.

[Medusa Cascade]

It could be organized in a few days.

Took over two months for me.

[Xandrigity]

Took over two months for me.

I was involved in sending home maybe twelve infants home in similar situations, with lethal conditions to die at home over my career. It varied it time sure but it can be done. This was in the US so that could be part of it as well.